Brain Injury Awareness Week: Survivors are already aware of difference, it’s time for everyone else to catch up

This week marks Brain Injury Awareness Week in the UK. In the neurorehabilitation service I work in we’ll be celebrating with a range of brain-related activities. We’ll be watching injury related films such as The Crash Reel, having a quiz and getting crafty with brain-themed cake decoration. We’ll be promoting the importance of looking after your brain – wearing a helmet, eating well and taking time to relax. Whilst it’s appropriate for us to throw these events, I can’t help but feel that are energy can be somewhat misplaced. Brain Injury Survivors aren’t the one’s who need their awareness raised. They live with disability and difference every day. Though some have difficulty fully understanding their injuries, they are experts in their own experience. The problem relates more to everyone else, the vast swathes of the population who have little understanding of brain injury and limit the social inclusion of survivors in their ignorance.

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Brain cake – delicious but perhaps not really raising awareness about the experience of brain injury

On the whole general knowledge about the brain isn’t high. It is after all, a highly complex organ that even expert neuroscientists don’t fully understand. Myths about the brain abound, ideas about “left and right brain thinkers” and the percentage of our brain we use haven’t been especially helpful. Understanding the brain requires looking at who we are as people, what makes us human, when makes up our identity, and how much control we truly have over our behaviour. This is what makes the brain fascinating, but it’s a difficult topic to confront. And then extrapolating from the delicate, blancmange like organ to understanding why it is that a survivor might suddenly get angry for no obviously observable reason, struggle to manage bills, become exhausted and overwhelmed, or any one of the many common consequences of brain injury.

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Stroke, sexuality, sexism…back on track!

Harmless fun? If my meal's going to be unnecessarily gendered I hope it comes with pink icing and glitter

Harmless fun? If my meal’s going to be unnecessarily gendered I hope it comes with pink icing and glitter

After a long hiatus I’ve finally got time to get back to this blog. I can see that my last entry was Halloween 2013 – which was about 6 months before my thesis hand-in (so you can imagine how the time following this was spent). I’ve now completed my studies, qualified and am working as a clinical psychologist in a brain injury service. Getting up to speed on my new job (not to mention actually having to go to work 5 days a week, without a study day in sight!) has left me pretty shattered but I’m slowly adjusting to my new routine. A quick update on my recent movements:

  • I recently submitted my thesis (which was about sexual issues post-stroke and how rehab professionals work with these) for publication and I also presented it as part of a talk on sexuality and acquired brain injury that I did at the last SHADA (Sexual Health and Disability Alliance) meeting. I think I’ve now exhausted the potential to spread this piece of research (until it’s finally published), I’m ready to move onto studying something a little different now and also getting back to writing.
  • Following the submission I finally got round to writing something for my university blog, “Discursive of Tunbridge Wells”, something I’ve been meaning to do for ages. Salomons runs their own blog as part of their public engagement drive, it covers a whole range of issues related to applied psychology – debates within mental health, professional roles, lived experiences. It has some great content from a really wide range of contributors and I’m quite proud that my old department is putting something like this out there – I think it’s the only clinical psychology course to do so. My piece is about supporting people with cognitive impairments (e.g. brain injury, LD) to vote and how mental capacity relates to this (or doesn’t). It’s something I’d come across in my work recently and I definitely feel it needs more awareness! I’m hoping to do more writing relating to health and disability issues in forums such as this.
  • A couple of days ago I received a request from a journalist. I was initially quite excited as I thought maybe they’d picked up my voting piece (it is topical after all…). But alas no, they were running a piece on something on twitter I’d responded to the other day. The “story” relates to a picture of a cafe menu in Bristol that has “for him” and “for her” breakfasts. The masculine meal is a greasy Full English whilst ladies get a lighter option with salad leaves and blueberries. Whilst I don’t think a gendered breakfast is the biggest threat to feminism, this kind of lazy stereotyping annoys me, especially the underlying idea that women should have the diet-friendly dish. The story was originally published in the Bristol Post, but was then picked up by several other media sources (including the Daily Mail) which pretty much recycled the entire article and quotes “Outrage at Sexist Menu!!”. The article has of course attracted many entertaining commenters who see us as miserable feminazis with nothing better to do than get offended. I’m amused that this has generated far far more interest than any of my research or any of the many articles I’ve written over the years!  I feel sorry for the cafe who admittedly acted thoughtlessly but didn’t really deserve the level of attention this piece of non-news has achieved.
No need to actually go on the Daily Mail website, here's the bit that mentions me as if I have some kind of special knowledge on these matters.

No need to actually go on the Daily Mail website, here’s the bit that mentions me as if I have some kind of special knowledge on these matters.

So I’m hoping to do much more writing, presenting and generally getting out into the world in the coming year. If anyone needs a comment or piece written on any of my usual topics (brain injury and rehabilitation, neuropsychology, sex and disability, ableism and “invisible disabilities”, sexual and gender minority issues and related things) do let me know! Or I can comment on minor acts of unintentional sexism, I’m versatile.